We want to thank everyone for the kind and loving messages. Jennifer's impact was far greater than she ever knew. There was a touching article in the NY Times today which we wanted to share here, for all of our followers.
We greatly appreciate everyone's understanding and patience during this difficult time. The daily blog posts will have to be postponed, but check back for updates about Jennifer's memorial service.
Thank you!
Monday, September 24, 2012
Wednesday, September 19, 2012
Heavy Heart
It is with deep sorrow that we announce
the untimely passing of Jennifer Jaff, Esq, Founder and Executive Director of
Advocacy for Patients with Chronic Illness, Inc. Jennifer conceived of and
founded Advocacy for Patients because of her extraordinary passion and
commitment to ensuring equal rights for those living with chronic illness. She dedicated her life and career to
improving the quality of life for others based on her own experience with
Crohn’s disease.
Her advocacy on a personal level
with individuals, in chronic illness arenas for larger disease populations, and
in global forums for local and national health care reform was unparalleled in
its sophistication, conviction, judiciousness, and honor. Jennifer believed
fiercely that this cause was a civil rights issue, and her belief in the worth
and rights of every individual with a chronic illness set precedents and models
for equality nationwide. Her goal to
increase awareness of the need for and the power of advocacy for chronic
illness touched all of us who knew her as well as the population at large. She always
worked with amazing energy, grace, fortitude and resolve.
It was Jennifer’s aim to never refuse an opportunity to help someone in need and we know that there are many clients and companies with whom she was working at the time of her death. We appreciate the patience of our clients, friends and partners as the Advocacy for Patients staff works to contact those immediately affected by this tragic and unexpected loss and to develop plans for the future.
It was Jennifer’s aim to never refuse an opportunity to help someone in need and we know that there are many clients and companies with whom she was working at the time of her death. We appreciate the patience of our clients, friends and partners as the Advocacy for Patients staff works to contact those immediately affected by this tragic and unexpected loss and to develop plans for the future.
We know that Jennifer will always
be remembered for her dedication and the actions she took in the pursuit of
justice for those with chronic illness.
Be assured that the Board of Directors and the Staff of Advocacy for
Patients will do everything in our power to promote Jennifer’s great legacy.
We are informed by Jennifer’s
family that any funeral arrangements will be private, but we are planning a
memorial gathering for Jennifer in the next few months and we will announce the
date, time and place once those details are final. For those who want to donate gifts in her
memory, please send them through our website, or by mail to Advocacy for
Patients with Chronic Illness, Inc., 195 Farmington Avenue, Suite 306,
Farmington, CT 06032.
Thank you.
Carol Fain Walters
President
Wednesday, September 12, 2012
Mini-Break
I've waited all summer for a time when I could take a few days off. There was always something in the way -- until now. So I'm taking a couple of days off from blogging (and from life). I'll be hunkered down with the most purrrrrfect Ms. Emily, a couple of good books, a few good movies, and nothing else.
But before I go, a bit of good news to leave off on -- the number of Americans without insurance has fallen to its lowest rate since 2008, all due to health reform, mostly due to coverage of people under age 26. If only the American people will let this play out to 2014, things really are going to get better. Here's the proof that it's already happening.
Have a great week-end. See ya Monday! Jennifer
But before I go, a bit of good news to leave off on -- the number of Americans without insurance has fallen to its lowest rate since 2008, all due to health reform, mostly due to coverage of people under age 26. If only the American people will let this play out to 2014, things really are going to get better. Here's the proof that it's already happening.
Have a great week-end. See ya Monday! Jennifer
Hump Day Headlines
The Institute of Medicine issued a report saying there's a TON of waste and opportunity for savings in the health care system. The big recommendation is payment for quality outcomes rather than for each individual service. We have to do something -- that much, we all agree on.
Indeed, health care costs nearly doubled for workers since 2002. In what industry can you double your prices every 10 years without changing the product, or even cutting back on it? And you don't think we have to do something to regulate insurance companies? Indeed, increased rate regulation and tools like the medical loss ratio slowed the growth in premium prices to about 4% -- well below last year's increase and well below the decade's average of 8%.
Figures on the number of uninsured Americans should be released today. The 2010 figures were right about 50 million. Today will be the 2011 figures. There should be a reduction, at least for the young Americans on their parents' policies to age 26. We'll see.
One of the delivery system reforms in the health reform law is Accountable Care Organizations -- groups of hospitals, doctors, other providers to come together to provide complete care that is coordinated and patient-centered -- and, hopefully, saves money. Previously, this was done as a pilot program, and the results will be published today. The main finding is that Accountable Care Organizations save money.
Last week-end, Mitt Romney said he would keep the good parts of the health reform law, like coverage of people with pre-existing conditions. However, apparently, this only applies to people who have not had a gap in coverage. If you have had a gap, or if you've never had insurance, your option would be a high risk pool. Twice as expensive, lifetime limits -- high risk pools are no answer for us. Please, people. Read and think for yourselves.
Fish oil pills don't prevent cancer.
The top 10 finalists in a scientific photography contest -- don't miss this. These are stunningly beautiful.
And that's it for this morning. Have a great day! Jennifer
Indeed, health care costs nearly doubled for workers since 2002. In what industry can you double your prices every 10 years without changing the product, or even cutting back on it? And you don't think we have to do something to regulate insurance companies? Indeed, increased rate regulation and tools like the medical loss ratio slowed the growth in premium prices to about 4% -- well below last year's increase and well below the decade's average of 8%.
Figures on the number of uninsured Americans should be released today. The 2010 figures were right about 50 million. Today will be the 2011 figures. There should be a reduction, at least for the young Americans on their parents' policies to age 26. We'll see.
One of the delivery system reforms in the health reform law is Accountable Care Organizations -- groups of hospitals, doctors, other providers to come together to provide complete care that is coordinated and patient-centered -- and, hopefully, saves money. Previously, this was done as a pilot program, and the results will be published today. The main finding is that Accountable Care Organizations save money.
Last week-end, Mitt Romney said he would keep the good parts of the health reform law, like coverage of people with pre-existing conditions. However, apparently, this only applies to people who have not had a gap in coverage. If you have had a gap, or if you've never had insurance, your option would be a high risk pool. Twice as expensive, lifetime limits -- high risk pools are no answer for us. Please, people. Read and think for yourselves.
Fish oil pills don't prevent cancer.
The top 10 finalists in a scientific photography contest -- don't miss this. These are stunningly beautiful.
And that's it for this morning. Have a great day! Jennifer
Tuesday, September 11, 2012
Tuesday Tidbits
The health reform law will make it easier for individuals to shop for, and compare, insurance. That has touched off a wave of marketing as companies compete for markets they never aimed at before.
Mitt Romney is really struggling over health reform these days. He wants to tack to the center, supporting things like coverage of pre-existing conditions, but the GOP base hates, with intense passion, anything to do with health reform. Rick Santorum always said Romney was the worst possible person to go against President Obama on health reform because of Massachusetts -- but it may be true not only for that reason, but because Mitt Romney really isn't against every aspect of health reform. But will he ever stand up to the right of his party? When they got upset about his warming towards parts of the law, he immediately reaffirmed his vow to repeal health reform day one. Meanwhile, former Obama health advisers issued a report that tells us what Romney/Ryan's Medicare plan would cost us -- and they now say they were being kind to Romney. And then there's a new report from the Kaiser Family Foundation that also says it would cost seniors thousands. It's fair to guess Governor Romney doesn't agree.
An Epidemic of Absence -- a new book on allergies and autoimmune diseases makes the case that getting rid of too much bacteria has weakened our immune systems. I tend to buy this. Why else is it that richer countries have higher incidence of Crohn's, MS, etc.? Now, if only we could be cured by rolling around in the mud!
The US Preventive Service Task Force says testing for ovarian cancer is ineffective and generates too many false positives. In fact, this isn't news -- the panel has been recommending against this test for years, as has the American Congress of Obstetricians and Gynecologists. Hmm.
The government is beefing up suicide crisis lines for military and civilian. Call 800-273-8255. 36,000 people die of suicide each year. The goal is to save 20,000 of them.
Every second counts when trying to open a blocked artery. The technology is amazing, truly.
Local health offices are going door to door, preaching better health. Some say newsletters and dropping in isn't enough -- but isn't it better than nothing?
When children learn a musical instrument early on, they have long-term benefits, even years after they stop taking music lessons.
Steroids for children may stunt their growth. This includes kids who use steroids for asthma.
And that's it for this morning. Have a great day! Jennifer
Mitt Romney is really struggling over health reform these days. He wants to tack to the center, supporting things like coverage of pre-existing conditions, but the GOP base hates, with intense passion, anything to do with health reform. Rick Santorum always said Romney was the worst possible person to go against President Obama on health reform because of Massachusetts -- but it may be true not only for that reason, but because Mitt Romney really isn't against every aspect of health reform. But will he ever stand up to the right of his party? When they got upset about his warming towards parts of the law, he immediately reaffirmed his vow to repeal health reform day one. Meanwhile, former Obama health advisers issued a report that tells us what Romney/Ryan's Medicare plan would cost us -- and they now say they were being kind to Romney. And then there's a new report from the Kaiser Family Foundation that also says it would cost seniors thousands. It's fair to guess Governor Romney doesn't agree.
An Epidemic of Absence -- a new book on allergies and autoimmune diseases makes the case that getting rid of too much bacteria has weakened our immune systems. I tend to buy this. Why else is it that richer countries have higher incidence of Crohn's, MS, etc.? Now, if only we could be cured by rolling around in the mud!
The US Preventive Service Task Force says testing for ovarian cancer is ineffective and generates too many false positives. In fact, this isn't news -- the panel has been recommending against this test for years, as has the American Congress of Obstetricians and Gynecologists. Hmm.
The government is beefing up suicide crisis lines for military and civilian. Call 800-273-8255. 36,000 people die of suicide each year. The goal is to save 20,000 of them.
Every second counts when trying to open a blocked artery. The technology is amazing, truly.
Local health offices are going door to door, preaching better health. Some say newsletters and dropping in isn't enough -- but isn't it better than nothing?
When children learn a musical instrument early on, they have long-term benefits, even years after they stop taking music lessons.
Steroids for children may stunt their growth. This includes kids who use steroids for asthma.
And that's it for this morning. Have a great day! Jennifer
Monday, September 10, 2012
I truly do hate Mondays
First Romney says he won't toss out all of health reform. In particular, supports coverage of pre-existing conditions. Except that his campaign staff says not to worry -- he won't cover people with pre-existing conditions. Are you any clearer on where he stands now than you were before Meet the Press? He says people with pre-existing conditions would get insurance -- but would it be the same insurance as everybody else, or would it be super-expensive high risk pools?
Meanwhile, a liberal think tank says Romney's plans for Medicare would cost WAY more for seniors and earn way more for private insurance.
Due to health reform, more young adults than ever have health insurance. This is likely due to eligibility of kids to age 26 on their parents' policy.
USA Today's Nashville critic is chronicling his journey through surgery and recuperation.
Private school vaccine opt-outs are on the rise.
And that's what I've got for you this Monday morning. I'm ready to go back to bed right now. Sadly, that's not happening. So have a great day! Jennifer
Meanwhile, a liberal think tank says Romney's plans for Medicare would cost WAY more for seniors and earn way more for private insurance.
Due to health reform, more young adults than ever have health insurance. This is likely due to eligibility of kids to age 26 on their parents' policy.
USA Today's Nashville critic is chronicling his journey through surgery and recuperation.
Private school vaccine opt-outs are on the rise.
And that's what I've got for you this Monday morning. I'm ready to go back to bed right now. Sadly, that's not happening. So have a great day! Jennifer
Friday, September 7, 2012
NY Times Puzzle Solved!
Pseudochromhidrosis. Read about it here. And if anybody asks you why Smurfs are blue, the answer is pseudochromhidrosis! Jennifer
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